‘Jigsaw Kid’ lives with jumbled up internal organs
A girl has been nicknamed the ‘Jigsaw Kid’ after she survived being born with five spleens, a hole in her heart, a diseased and back to front liver, two left lungs and her stomach on the wrong side.
Bethany Jordan, six, was born with many of her organs back to front but amazed doctors who had warned her parents, Lisa, 37, and Robert, 44, there was little chance she would survive birth. Her problems mean that, while she looks a picture of health, she cannot stand up to some of the normal rigours and strains of an average child.
Bethany, sufferers from what is known as Ivemark Syndrome, an extremely rare genetic disorder, characterised by a poorly-formed cardiovascular system and organs in the wrong place. Strangely, when she exercises too much, her heart can be seen beating through her back.
There are so few sufferers that very little is known about the condition or what could be its cause.
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